Browsing by Author "Humayun, Jhangir"

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    Retrospective Analysis of Swedish Colorectal Cancer Registry: Validation through comparison with medical records
    (2022-05-23) Humayun, Jhangir; University of Gothenburg / Institute of Medicine; Göteborgs universitet / Institutionen för medicin
    Introduction: The Swedish colorectal cancer registry (SCRCR) is a national registry that is considered complete, accurate and comprehensive regarding primary outcome measures, but recent studies have indicated underreporting regarding secondary outcome measures like postoperative complications. Aim(s) / Objective(s): The main aim of the study is to analyze the reliability of the SCRCR. The secondary objective is to present the comorbidity data and surrogate variables indicating possible frailty of the patients operated for colorectal cancer (CRC). Methods: 150 patients were included, and data was collected from SCRCR and patient medical records. Nine variables were selected for the reliability analysis. Comorbidity among the group was studied using Charlson Comorbidity Index (CCI). Furthermore, surrogate variables studied for frailty were, whether patient care planning was held and where patients were admitted from. Results: Out of 149 included, 82 males were male and mean age (SD) was 70.6 ± 12.1 years. The mean comorbidity score according to CCI (SD) was 5.74 ± 2.14 indicating circa 5% predicted 10-year survival rate. 91% of the patients were admitted from and discharge to home. 7% were admitted from emergency ward and 2 % from care home while 7 % were discharged to other care and 2% died. Before discharge, 26 % of the patients underwent patient care planning. Regarding validity of the registry, mean exact agreement was 91.5% and κ-value ranged from 0.078 indicating no agreement to 0.959 which indicates almost perfect agreement. Conclusion: This retrospective registry-based study reports that SCRCR shows good reliability. The strength and accuracy of SCRCR is in variables that are clearly defined and stated while variables with broad definition or that require further interpretation may be underreported. Current study also indicates that a substantial number of patients operated for CRC have several known comorbidities and other indicators for frailty.