Designing for learning and knowing: Nurses in chronic care and patients' self-monitoring data
Sammanfattning
This thesis focuses on nurses’ work practice in chronic care and their learning and knowing in relation to their patients’ self-monitoring data. It is anticipated that self-monitoring data used as a support for healthcare professionals’ work will help to overcome the current challenges the healthcare system is facing. Because of the way nurses’ work builds on learning and knowing in relation to
data produced by patients, they will be expected to be able to use this kind of data when delivering care to the patients. However, we need to learn about
what happens when a self-monitoring tool is developed and implemented in chronic care nurses’ work practice. The aim of this thesis was, therefore, to specifically investigate the nurses’ learning and knowing when they have access to the patients’ self-monitoring data.
These issues were explored using a design ethnographic approach in a pelvic cancer rehabilitation clinic. Study I found that the nurses in chronic care intertwine the patients’ lived experience with the nurses’ medical knowledge and clinical experience to support the patients’ learning about their disease. Study II found that nurses manage the complexity of qualitative phenomena and mobile application features as a way to participate in a design process of a self-monitoring tool. Study III revealed the changes that occur in nurses’ work practice when they gain access to their patients’ self-monitoring data. Finally, the following themes across these studies were identified. First, mutual learning points to the different levels of learning that the nurses need to cope with. Second, the translation work of nurses builds on creating
connections among the patients’ lived experiences, what the nurses are able to do, and the self-monitoring tools.
Delarbeten
Cerna, K., Ivarsson, J., Weilenmann, A., & Steineck, G. (2019). Supporting self-management of radiation-induced bowel and bladder dysfunction in pelvic-cancer rehabilitation: An ethnographic study. Journal of Clinical Nursing, 28(13-14), 2624–2634.
::doi:: [10.1111/jocn.14849]:: Cerna, K., Weilenmann, A., Ivarsson, J., Islind., A. S., Lundin, J., & Steineck, G. (Submitted only). Nurses’ work practice in design: Managing the complexity of pain Cerna, K., Grisot, M., Islind., A. S., Lundin, J., Lindroth, T. & Steineck, G. (Submitted only). Patient-generated data and the emergence of novel knowledge practices in healthcare: Designing for categorical work in chronic care
Examinationsnivå
Doctor of Philosophy
Universitet
Göteborgs universitet. Utbildningsvetenskapliga fakulteten
University of Gothenburg. Faculty of Education
Institution
Department of Education, Communication and Learning ; Institutionen för pedagogik, kommunikation och lärande
Disputation
Fredagen den 29 november 2019, kl. 13:00, Göteborgs universitet, Pedagogen, Hus B, Sal BE 036
Datum för disputation
2019-11-29
Datum
2019-11-06Författare
Černá, Kateřina
Nyckelord
Nurses
chronic care
designing
learning
knowing
self-monitoring data
design ethnography
work practice
Publikationstyp
Doctoral thesis
ISBN
978-91-7963-001-0 (pdf)
978-91-7963-000-3 (print)
ISSN
0436-1121
Serie/rapportnr.
Gothenburg Studies in Educational Sciences
441
Språk
eng